Blog Posts - Ecp



The saga of another mystery spot

Spot under hereThe spot on the inside of my right ankle has been there for months and months. It is a circle the size of a nickel. I have seen blogs where people post gross photos of their skin, but I'm not going to do that. I covered it with a fun b...

On way to Dana-Farber, joy of low expectations

Little bit of color: my mom's painting on left, my flowers, and Matisse printWhen a friend asked how my ride was yesterday and I said that the driver was pleasant and actually looked me in the eye and said hello and asked how I was, she said, "Nothin...

Stranded... in my own house

I couldn't complain about the person driving me to Boston for my appointment yesterday because I never saw him. I waited in my usual spot looking out the window at my driveway and checked my phone to see if I had missed a call.I called the company, S...

Putting pain in perspective

A moment of reflection on pain.Facebook usually sends photo memories but this week I'm getting blog posts.This time three years ago I was having a hard time recovering from the kidney surgery I had gotten on Katie's birthday. I remember standing in t...

Sometimes serene, sometimes not so much

Highlight of the weekThe sound of a woman's voice with an accent I couldn't pinpoint was encouraging when I picked up the phone for last week's ride, as was the name of the company: Serene Transportation.I wasn't disappointed. The driver was a lovely...

The trouble with (some) words

Newton haircutWhile taking a little break from blogging (laying low) I did some of these things in a discombobulated way, not in order of occurrence: went to spinning straight from Boston in my street clothes, went to yoga in my tennis clothes, took...

Scheduling screwup and Chewbacca Mom

I really messed up with rescheduling my light therapy treatments, which I think will be my new shorthand for ECP.After learning that they had extended the time between treatments too quickly, I booked my next ride for two weeks, instead of three, fro...

Riding in cars, tracking down doctors

When we left off, I was frustrated and annoyed. I had finally secured a dermatology appointment but the car service that was going to take me canceled and I was unsure whether I could even get to Boston. Well the driver who came was one of the more i...

Frustrated and annoyed

Sometimes you can be chugging along dealing with the larger things and then a little thing can get to you.For example, yesterday I was frustrated to the point of tears in trying to get a dermatology appointment tomorrow after my checkup and ECP today...

Altering schedule creates domino effect

I think I forgot to say that they stretched out my internal sunburn even further, to every three weeks. They are pleased with the progress that I have made in the year that I have been doing this so that is why I get to go less frequently. (I have be...

Mistakes were made

I made a mistake by getting the photodymanic therapy Thursday so close to Passover and the seder I'm having today, but by the time I realized it and went to reschedule I discovered I would have to wait until fall. With precancerous spots in vari...

Bad day at the Big Y in South Hadley

Yesterday I brought my oxycodone prescription to the Big Y in South Hadley so I could take it with me to Boston for pre-medicating before my ECP. I do not want to haggle with anyone about the degree of my pain when they don't believe I know what I ne...

Mohs today, ECP and museum tomorrow

Today, needles in my face.Tomorrow, in my arm.Par for the course.An odd cliche for me to use since I don't play golf but it fits.I drove to Diane's and she was kind enough to drive me to Brigham and Woman's Faulkner Hospital for a Mohs surgery on a t...

Not enough room on patient history form

I would have a week off from Boston if not for my consultation tomorrow at the Mohs and Dermatologic Surgery Center at Faulkner Hospital. I could have tried a back-to-back with ECP next week, but I wanted to take the first available, which is tomorro...

I think I forgot to say...

Ben, birthday girl, and JoeAt only seven years old, I hope I will be forgiven for skipping some things. I took a little break while considering the blogger's "age-old" question: Do I still have something to say? (Age-old is in quotes because blogging...

Countdown to my seventh birthday

Five days to my seventh birthday.The other night I dreamt I was climbing up a steep set of stairs. I was wearing a pair of old flip-flops that were falling apart. The left one especially was in bad shape, and it kept catching on the stair. Also I was...

After appointments on two days, a mixed report

The good news is that I have something to be upset about that is not as serious or sad as what has been going on recently, and that I have more crazy car service stories to tell, and that I think I have finally been able to get rid of Westport Transp...

Adding and subtracting

Only at a dinner party where you've known the guests for a long time could you hold up your plate and exclaim, "I'm eating spinach salad!"This happened last week when I ate spinach for the first time in six years. Not that I was craving spinach. I ha...

A day of odd happenings

Yesterday was strange.It started with my usual routine these days, checking the three spots where I have put nifty black mousetraps that allow me to release the mouse in a bag without looking at it and then place the peanut-butter-laden trap back in...

When I cried two times in one day

I hadn't planned to start my every-other-week ECP schedule yesterday, but it happened that way when the driver from Westfield Transport failed to show up. Worse still, when I called to find out why the driver was late, the owner lied to me and said h...


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