Blog Posts - Trigeminal Neuralgia

Trigeminal Neuralgia also known as prosopalgia or Fothergill’s disease is a chronic neuropathic pain condition affecting the trigeminal nerve. This disorder is characterised by episodes of intense pain on the facial area that lasts from a few secon...

1st International Trigeminal Neuralgia Awareness Day on October 7th 2013. Monuments and Bridges throughout the globe will turn teal for the day (teal is the color assigned to tn) The Oamaru Opera House in New Zealand, a falls in Canada, the Boston Za...

I was at church and someone started taking pictures with a flash camera.My eye cannot tolerate bright light, especially when I am unprepared for it. My entire body recoiled, pain searing my eye as the flash lit up the sanctuary.Fearfully I kept my he...

I posted a video of a short version of my story.http://ireport.cnn.com/docs/DOC-1032817...

September is National Pain Awareness Month. In Pennsylvania it is also Women In Chronic Pain Month.The latter is an easier concept. Bringing attention to the disparity and gender bias in treating chronic pain in women vs. men.To my mind, the former...

We who live with trigeminal neuralgiaSoldiers in a war.Fighting an invisible enemy.What is the fighting for?Trigeminal neuralgia, “the suicide disease”The worst pain known to man, Help us, find a cure fast please.A knife, a lightning bolt A slash...

We who live with trigeminal neuralgiaSoldiers in a war.Fighting an invisible enemy.What is the fighting for?Trigeminal neuralgia, “the suicide disease”The worst pain known to man, Help us, find a cure fast please.A knife, a lightning bolt A slash...

Only twice in my 30-plus years of living with chronic pain have I had a problem getting my narcotic medication.The first time a relative lied to a doctor.I was visiting from out-of-state. The pain was bad. I went to take a codeine pill and realized...

I was watching the TV show Monk. I was captivated by the friendship and loyalty shown to Monk by the people with whom he used to work.I used to work in a hospital. There was a sense of kinship and caring that we felt towards one another.So many tim...

A Pained Life: Changing Attitudes about Medical MarijuanaJuly 17th, 2013 by Carol Levy, Columnist When I was in my early 20’s, years before the onset of my pain, I was offered a marijuana cigarette. I didn’t want it, but the pressure from my fr...

“God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.”I think most of us are familiar with those words.  It is the serenity prayer used by Alcoholics A...

The choir banquet is coming up.  I have gone to the last 3.  They are nice.  The restaurant is nice, the food okay, the company good.But.  The lights are bright.  No matter where I sit I have to look to the left and to the ri...

     When someone hears my story about the medical malpractice that paralyzed my face, invariably they say, “What goes around comes around” or “He’ll get his.”  Some talk about “payback” or say “Karma wil...

 Ah spring!  The time to go through the closets, throw out clothes we don’t want or need anymore (or fit in), put away winter things and bring out the spring outfits.I go into my pantry and am surprised, as I am every year, to see how man...

It occurred to me after reading the suggestions people gave me for how to deal with the issue of my eye pain being t riggered by a lit candle that one of the problems we face is the individuality of not only the pain, but the minute specifics of...

I pretty much hate the holidays.  I hate being alone.  I have been invited 2x over the past few years to someone's house, not family, and that was lovely.  I was so happy to feel "a part of" if only for the few hours we spent together.

As you may recall I received this reply to my post about doctors, patients and money from someone who self-described as an anaesthesiologist and pain specialist: "...I get lied to and BS'd everyday by people trying to tell how to do my job...

"My (family, friends, colleagues) do not support me.  They say mean things.  They do not 'get" it." I read this over and over again in the online support groups.I know the pain of having people turn away.  And the pain of thi...

I was surprised by the vehemence of a reply I received to my last posting. The person who commented said he (she?) was a certified anaesthesiologist and pain specialist.He said he gets "lied to and BS'd everyday by pain patients." who tell...

Sign in doc's office: "If you are a new patient and have a high deductible you will be required to pay $100.00 at your first visit."I was incensed when I first saw it.  For the most part insurance keeps the money part of medical care invisi...

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