Onward Through the Fog Blog Posts

  • Approval for Commercial Sale of Ampligen to Treat Severe Cases of ME/CFS in the Argentine Republic
    on Sep 5, 2016 in ampligen
    At long last, Ampligen is approved somewhere. Not here, unfortunately, but it's a first step. With Argentinian approval, there is the possibility of approval elsewhere. More to the point, in Argentina at least, there is official acknowledgement...
  • Researchers Identify Characteristic Chemical Signature for Chronic Fatigue Syndrome
    on Aug 31, 2016 in research
    By Scott LafeePress Release: U.C. San Diego, August 29, 2016. Chronic fatigue syndrome (CFS) is a mysterious and maddening condition, with no cure or known cause. But researchers at the University of California San Diego School of Medicine, using a v...
  • Urgent Call to Action! Support Congressional Call for Increased ME/CFS Research!
    on Aug 30, 2016 in advocacy
    By Mass CFIDS/ME and FM AssociationYou can help if you ACT NOW !!A letter in support of ME/CFS research to NIH Director Dr. Francis Collins, sponsored by two Representatives from California, is now circulating in Congress (House of Represen...
  • All in Your Gut
    on Jul 9, 2016 in microbiome research
    A study out of Cornell University made the news recently when Maureen Hanson's team found distinct alterations in the gut flora of patients with ME/CFS. The headlines trumpeted the "first" biological marker for the disease in the microbiome.Those of...
  • It's All in Your Gut
    on Jul 9, 2016 in microbiome research
    A study out of Cornell University made the news recently when Maureen Hanson's team found distinct alterations in the gut flora of patients with ME/CFS. The headlines trumpeted the "first" biological marker for the disease in the microbiome.Those of...
  • Chasing Competent Care Conference Report
    on Jun 17, 2016 in events
    By Sally BurchHope 4 ME & Fibro Northern Ireland ran an ambitious and exciting conference on Monday 6th June in The Stormont Hotel, Belfast.  The conference, “Chasing Competent Care” delivered a strong message calling for change to...
  • #MillionsMissing: A Day of Global Protest
    on Jun 3, 2016 in activism
    This post was originally published on ProHealth.By Erica Verrillo On May 25, 2016, protesters all around the globe gathered to demand greater recognition and research funding for ME/CFS. Simultaneous protests were held in Melbourne, Australia; L...
  • This Is It! May 12th International ME/CFS Awareness Day!
    on May 12, 2016 in activism
    A version of this post first appeared on ProHealth.By Erica VerrilloInternational ME/CFS Awareness Day was originated by Tom Hennessy, an ME patient and staunch advocate who testified at numerous national and international ME/CFS conference...
  • #MillionsMissing ME/CFS Protest: Demands
    on May 10, 2016 in activism
    Reprinted with permission from ME Action.On May 25, 2016, at the #MillionsMissing demonstrations, Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) patients and families, advocacy organizations and individual activists call for t...
  • Patients with Chronic Illness Rally to Raise Funds, Awareness, and Hope
    on May 6, 2016 in advocacy
    Note: For some easy ways to participate in May 12 Awareness Day, please see May 12th is International ME/CFS, Lyme, and FM Awareness Day!This article first appeared on Huffington Post. Reprinted with permission.By Stephanie LandRon Davis, best known...
  • Sign the Petition: ME is not MUPS - Dutch Patients Need Your Help!
    on Apr 21, 2016 in activism
    On March 29th 2016, the Dutch Health Council (the advisory body to Dutch Parliament) announced the names of the members of a newly formed Committee that has the important task to write an advisory report on the state of the scientific...
  • Reductio ad Absurdum: A Webinar with Dr. Avi Nath
    on Apr 21, 2016 in NIH
    On April 21, Solve ME/CFS Initiative hosted a webinar with Dr. Avindra Nath, NINDS intramural clinical director, and the lead investigator of NIH's ME/CFS study. (For those who missed it, the webinar will be available on the Solve CFS Youtube channel...
  • Visiting Whitney Dafoe: a dear friend who suffers from severe ME/CFS
    on Apr 14, 2016 in patients
    Reprinted with the kind permission of Stephanie Land.A version of this post first appeared on the author’s website at www.stepville.com.____________________By Stephanie LandA couple of months ago I discovered my friend Whitney had been bed-bound fo...
  • My Pen Pals at the NIH
    on Apr 11, 2016 in NIH
    A few weeks ago I wrote a letter to the NIH ME/CFS Trans-NIH Working Group, stressing the fact that Dr. Walitt was not qualified to be Lead Clinical Investigator of the NIH study, or, for that matter, to be involved in the study in any capacity. ...
  • Mystery of Chronic Fatigue Syndrome Solved!
    on Apr 1, 2016 in April Fools humor
    April 1, 2016. Today, the Director of the National Institutes of Health, Dr. Francis Collins, announced that an upcoming NIH study on chronic fatigue syndrome would be cancelled, due to an unexpected breakthrough by its lead clinical investigator Dr.
  • NIH Teleconference: Reassurances, Promises, Protestations
    on Mar 28, 2016 in NIH
    On March 8, NIH held a teleconference to inform people in the ME/CFS community about their upcoming study, and to answer questions.The hour-long conference consisted of short summaries of the NIH study by:Dr. Francis Collins, head of NIHDr. Walter Ko...
  • Operation Save Maryann's Home Care
    on Mar 18, 2016 in call to action
    Below is a shortened version of the appeal letter appearing on the You Caring donation website. I know Maryann, and I can attest to the fact that she is severely ill and totally dependent on home care. Please donate what you can. We must lo...
  • NIH Study: Foxes Guarding the Henhouse
    on Mar 11, 2016 in NIH
    When the NIH posted the protocol for its study on ME/CFS, it was immediately met with a storm of protest.First, the protocol used the discredited Reeves (aka Empirical) case definition to establish its cohort of patients.Second the tests seemed vague...
  • CDC Grand Rounds: Chronic Fatigue Syndrome: Advancing Research and Clinical Education, Part II
    on Mar 9, 2016 in CDC CDC Grand Rounds Nath
    This post first appeared on ProHealth.Transcript by Erica VerrilloOn February 16, 2016, the CDC hosted a one-hour session on ME/CFS. Featured speakers included Dr. Charles Lapp, Dr. Beth Unger, Dr. Anthony Komaroff, and Dr. Avi Nath. The session was...
  • CDC Grand Rounds: Chronic Fatigue Syndrome: Advancing Research and Clinical Education, Part I
    on Mar 7, 2016 in CDC CDC Grand Rounds Komaroff Lapp Unger
    Last month's CDC Grand Rounds on Chronic Fatigue Syndrome featured presentations by Dr. Charles Lapp, Dr. Elizabeth Unger, Dr. Anthony Komaroff, and Dr. Avindra Nath. A short Q&A session followed the final presentation.The full transcript of Part...
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